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We Are Not Alone: Learning to Live with Chronic Illness

by Sefra Kobrin Pitzele


A Delicate Balance: Living Successfully with Chronic Illness

by Susan Milstrey Wells


The Art of Getting Well: Maximizing Health and Well-being When You Have a Chronic Illness
(Hardcover)
by Martin L., M.D. Rossman (Foreword), David Spero, Martin L. Rossman

The CFIDS Report
Maintained by Craig Maupin, The CFIDS Report has links to articles on Advcocacy and Research.

 

Mismanaged Chronic Fatigue Syndrome Research Funds at the Centers for Disease Control and Prevention
 

Information on Mismanaged CDC Chronic Fatigue Syndrome Research Funds

Questioning the CDC

The Chronic Fatigue Syndrome (CFS, CFIDS) community is already aware of what some consider questionable practices at the Centers for Disease Control and Prevention. Now, writing in The Atlanta Journal-Constitution, in his article reprinted on his Web site former congressman and U.S. attorney Bob Barr says that the CDC needs to refocus its "scattershot" approach and redefine its mission. Barr contends that the CDC, whose annual budget is $7 billion of federal taxpayer money, lacks a clearly defined mission. Barr cites credibility problems such as the CDC 2004 reports that there wouldn't be enough flu vaccine which they later had to admit was based on faulty estimates; in fact, a huge surplus of vaccine had to be destroyed. Barr also cites the CDC's flawed 2004 report on obesity-related deaths and what he considers the CDC's questionable ventures into world mental health issues.

In 1995-97, the Centers for Disease Control and Prevention (CDC) used millions of dollars charged to the Chronic Fatigue Syndrome (CFS, CFIDS) research account to cover other, unrelated research programs.

The CFIDS Association of America's Report on the CDC Scandal

Co-Cure.org's Information on the Ongoing Saga of the CDC's Use of CFS Research Funds

CDC CFS Program Objectives Update

Inspector General's May 1999 report on CDC's CFS program

GAO's June 2000 report on CDC's and NIH's CFS programs

Dr. William Reeves' "whistleblower" statement

Q&A on Dr. Reeves' statement

CDC accused of lying to Congress

Overview of CDC's CFS program

 

Copyright © 2005 Pamela Rice Hahn
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Copyright © 1999-2006 by Pamela Rice Hahn. All Rights Reserved.


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Page updated 05 October 2005