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Archive for May, 2010

The “Will to Live” Project

By their very nature, no illness, accident, or injury is ever convenient. Someone’s medical care should not be based on what is most expedient, practical, or affordable for anyone other than the patient! It’s important that your wishes be known if — because of the inconvenience of illness, accident, or injury — you are unable to speak for yourself. Some believe that the “Will to Live” in which you appoint a health care proxy or health care agent provides you with more safeguards than does a living will.

Recent events have raised concerns among those of us in the disability community that “the danger in our culture is not that we will be over-treated, but rather that we will be under-treated. We already have the right to refuse medical treatment. What we run the risk of losing is the right to receive the most basic humane care — like food and water — in the event we have a disability.” (Source: Fr. Frank Pavone )
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Understanding Autoimmune Illness

by Pamela Rice Hahn

Your body constantly battles forces that are out to cause you harm, such as dangerous bacteria and viruses. Sometimes even despite your concerted efforts of practicing good hygiene and other preventative measures, one of them slips by and enters your body. When all goes according to plan, your immune system zaps these nasty microorganisms and all is well.

Other times, something triggers the “oops” mechanism in your body and your immune system becomes overactive and, in essence, gets a bit mixed up about what specifically it’s supposed to be doing. When that “oops” happens, your immune system begins to attack the healthy cells it’s supposed to be protecting.

The result can be that an autoimmune illness develops.
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Time Management for Those with Chronic Fatigue Syndrome, Fibromyalgia, & Other Disabling Conditions

by Pamela Rice Hahn

How do you manage your time when your body seems to be sabotaging your every effort to do so?

Anyone who copes with the turmoil caused by Chronic Fatigue Syndrome, Fibromyalgia, or another disabling conditions for which one of the primary symptoms is devastating fatigue knows how difficult it is to plan your time. It’s true: Nobody seems to have enough time at his or her disposal. But most people can predict with a degree of certainty how they’ll feel from one minute to the next. Predictability is a key to optimal time management. That’s the stuff of which time studies are made — or broken.
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by Shelly Burke

Our society as a whole is very goal-oriented, and when you have a chronic illness like Chronic Fatigue Syndrome or Fibromyalgia you may feel discouraged when you can’t accomplish as much as “everyone else” does. Setting goals gives you a way to work toward and measure your accomplishments.

To be effective, goals must be:

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Because many diagnosed with Chronic Fatigue Syndrome and Fibromyalgia also deal with Multiple Chemical Sensitivities (MCS) also known as Environmental Illness (EI) — which can include allergies and/or sensitivities to preservatives, food additives, or food itself, and because many diagnosed with Fibromyalgia must also contend with Irritable Bowel Syndrome (IBS), knowing which food additives are good, safe additives isn’t always easy to determine. (For example, in my case it doesn’t matter what’s added to bread in any efforts to make it more healthful; if the bread contains preservatives, it’s going to cause me to get a yeast rash. That sometimes doesn’t happen when I eat bread without preservatives; for me, I’ve found that yeast products are safest when I make my own using flour that I’ve ground myself and I now usually limit myself to sour dough bread that I make myself. –Pamela Rice Hahn) Learning what’s safe for you to eat is an ongoing process of education, diligence, and trial-and-error.

To help in your efforts to educate yourself about additives that can adversely affect your health, consult:

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What is Fibromyalgia?

What is Fibromyalgia?

Defining Fibromyalgia

Fibromyalgia — which is also sometimes referred to as Fibromyalgia Syndrome, Fibromyositis, Fibrositis, or Myofascial pain syndrome — is a chronic disorder characterized by tenderness in localized areas of the neck, spine, shoulders, and hips sometimes referred to as tender points or pressure points.

What are some of the other symptoms associated with Fibromyalgia?

In addition to the tender points, Fibromyalgia is also associated with other body disturbances, including:
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multiple chemical sensitivities mcs environmental illness ei

by Pamela Rice Hahn

What is Multiple Chemical Sensitivities (MCS)?

Whether you call it Multiple Chemical Sensitivities (MCS), Environmental Illness (EI), 20th century disease, Total Allergy Syndrome, Idiopathic Environmental Illness, or Chemical AIDS, or if you suffer chemical sensitivities along with the devastation of Gulf War Illness (GWI), Chronic Fatigue Syndrome (CFS), or Fibromyalgia (FMS), those who share my diagnoses are allergic or overly sensitive to many substances most of the world takes for granted.

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by Pamela Rice Hahn

(Written in 2005)

I took the Terry Schiavo issue very personally.

I’m of the opinion that once a judge sentences somebody with one disability to die an agonizing death from starvation and dehydration, it’s just a matter of time before that bar is lowered to include another disability and then another….

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Protection for the Disabled

There are many who believe that assisted suicide laws and other such legislation have the potential to discriminate against the disabled.

Disability rights involve more than those opposed to the assisted suicide and euthanasia movement that masks their agenda as compassion. There are other double standards for those with disabling conditions.

This Protection for the Disabled page includes links to disability rights publications and other resources.

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by Pamela Rice Hahn

Until recently, western medicine ignored the mind-body connection. Mind-body doesn’t mean that what’s happening in your “body” is “all in your mind;” however, it can sometimes mean that getting yourself in the right frame of mind might help your body. Research is now showing that learning how to cope with stress may also help you be more receptive to treatment. Therefore, learning how to control your anger may be just what the doctor ordered.

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Welcome to Chronic-Illness.org.

Proceeds from this Web site fund chronic illness and chronic condition awareness and support.

In addition to the chronic illness- and chronic condition-related articles, information, and t-shirt and gift idea designs on this site, Chronic-Illness.org is also the home of the Chronic Illness Realities comic strips.

pammy the pencil a character in the Writing Woes comic strip and the Chronic Illness Realities Comic StripPammy is the main character in two comic strips by Pamela Rice Hahn, the first of which is the Writing Woes comic strip. Pammy is a writer who is also disabled because of chronic illness and chronic conditions, so she also appears in the Chronic Illness Realities comic strip.

 The Everything Low-Salt Cookbook Book: 300 Flavorful Recipes to Help Reduce Your Sodium Intake by Pamela Rice Hahn
 The Everything Diabetes Cookbook: 300 Creative and Healthy Recipes That Put the Fun Back into Cooking by Pamela Rice Hahn
 The Everything One Pot Cookbook: Delicious and simple meals that you can prepare in just one dish; Burst: 300 all-new recipes! 2nd edition by Pamela Rice Hahn
The Everything Improve Your Writing Book 2nd Edition by Pamela Rice Hahn
Alpha Teach Yourself Grammar and Style in 24 Hours  by Pamela Rice Hahn and Ph.D. Dennis E. Hensley

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