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Archive for the 'Chronic Fatigue Syndrome/CFS/CFIDS' Category

May the (Organic) Source Be With You

Many who must cope with the allergies and food sensitivities that often accompany Chronic Fatigue Syndrome (CFS, CFIDS), Multiple Chemical Sensitivities (MCS aka Environmental Illness), and/or Fibromyalgia (FM, FMS) have to go through some trial and error to discern what eating plan will work best for them. Many follow the eating plan with a specific food choice agenda like the Specific Carbohydrate Diet™ — which is proven helpful for those who have the Irritable Bowel Syndrome (IBS) problems that often accompanies Fibromyalgia (or ulcerative colitis, Crohn’s Disease, and other digestive diseases as well), while others take a more relaxed approach to meeting their nutritional requirements, One thing that most experts agree all sensible eating plans have in common is that organic and all natural foods free of chemical additives and preservatives are the healthiest food choices.

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by Bernie aka TigerLilea

The Specific Carbohydrate Diet™ (SCD™) is a grain-free, lactose-free, and sucrose-free diet that was originally designed for Celiac Disease. Today the SCD is also used for Irritable Bowel Syndrome, Candida, Crohn’s Disease, Ulcerative Colitis, Diverticulitis, Cystic Fibrosis, and Chronic Diarrhea. The SCD™ is proving helpful to many with Chronic Fatigue Syndrome and Fibromyalgia as well.

The SCD was designed by Dr. Sidney Haas for his young Celiac patients. Years later his son, Dr. Merrill Haas also joined him in his research and together in 1951 they published a book called Management of Celiac Disease.

Elaine Gottschall popularized the SCD after her daughter successfully used the diet in the late 1950s to recover from Ulcerative Colitis.

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What is Chronic Fatigue Syndrome

Chronic Fatigue Syndrome (CFS), which is also sometimes referred to as Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) or Myalgic Encephalomyelitis (M.E.), is a condition characterized by the primary symptom of a prolonged, persistent debilitating fatigue not relieved by rest and not directly caused by other conditions. In general, a diagnosis for CFS requires that the tiredness is severe enough for at least a 50% decrease in the patient’s ability to participate in ordinary activities. The Centers for Disease Control (CDC) describes CFS as a distinct disorder with specific symptoms and physical signs, based on the exclusion of other possible causes.

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chronic fatigue syndrome

chronic fatigue syndrome -- no respectThis page is the index to Chronic Fatigue Syndrome (CFS), Chronic Fatigue Immune Dysfunction Syndrome (CFIDS), and Myalgic Encephalomyelitis (M.E.) awareness t-shirt and gift idea designs in the Chronic-Illness.org T-Shirts and Gift Shop. Some are serious; others are humorous.

For most designs, you can choose from a t-shirt, coffee mug. set of postcards, set of greeting cards or note cards, apron, coaster, framed tile, sweatshirt, and other gift gear.

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NIH to Fund 6-10 CFS Studies

News from The CFIDS Association of America is that: “On July 14, 2005, the National Institutes of Health issued a Request for Applications (RFA) titled ‘Neuroimmune Mechanisms and Chronic Fatigue Syndrome.’ The announcement states that approximately $4,000,000 has been set aside for successful applications, including an intention to fund 6-10 new studies.”

Additional Studies Details and How to Write to Thank “NIH Director Dr. Elias Zerhouni” Advocacy Information

NIH RFA Info

Nevada CFS Research Center

CFIDS.org is reporting that, thanks to the work of advocates Annette and Harvey Whittemore whose daughter Andrea has struggled with CFIDS for more than 17 years, the state of Nevada has approved funding for a state-of-the-art clinic and research center for Chronic Fatigue [and Immune Dysfunction] Syndrome and cancer research. For more information, read Out & About: Something to Celebrate.

Information on Mismanaged CDC Chronic Fatigue Syndrome Research Funds

Questioning the CDC

The Chronic Fatigue Syndrome (CFS, CFIDS) community is already aware of what some consider questionable practices at the Centers for Disease Control and Prevention. Now, writing in The Atlanta Journal-Constitution, in his article reprinted on his Web site former congressman and U.S. attorney Bob Barr says that the CDC needs to refocus its “scattershot” approach and redefine its mission. Barr contends that the CDC, whose annual budget is $7 billion of federal taxpayer money, lacks a clearly defined mission. Barr cites credibility problems such as the CDC 2004 reports that there wouldn’t be enough flu vaccine which they later had to admit was based on faulty estimates; in fact, a huge surplus of vaccine had to be destroyed. Barr also cites the CDC’s flawed 2004 report on obesity-related deaths and what he considers the CDC’s questionable ventures into world mental health issues.

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You’ve Never Been Tired Like This

by Pamela Rice Hahn

When a circumstance, film, or something I’ve read moves me to tears, I often joke that “it’s helping me clear my sinuses.” On some days, tears can occur because of being overwhelmed by what for others would simply be coping with some everyday details. On this day, those tears occurred when I read “I’m sick again” in Anne Urso’s article You’ve never been tired like this in the June 2005 issue of Glamour magazine. Anne’s article chronicles her experiences with Chronic Fatigue Syndrome.
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In addition to the chronic illness- and chronic condition-related t-shirt and gift idea designs, information, and articles on this site, Chronic-Illness.org is also the home of the Chronic Illness Realities comic strips.

pammy the pencil a character in the Writing Woes comic strip and the Chronic Illness Realities Comic StripPammy is the main character in two comic strips by Pamela Rice Hahn, the first of which is the Writing Woes comic strip. Pammy is a writer who is also disabled because of chronic illness and chronic conditions, so she also appears in the Chronic Illness Realities comic strip.

 The Everything Low-Salt Cookbook Book: 300 Flavorful Recipes to Help Reduce Your Sodium Intake by Pamela Rice Hahn
 The Everything Diabetes Cookbook: 300 Creative and Healthy Recipes That Put the Fun Back into Cooking by Pamela Rice Hahn
 The Everything One Pot Cookbook: Delicious and simple meals that you can prepare in just one dish; Burst: 300 all-new recipes! 2nd edition by Pamela Rice Hahn
The Everything Improve Your Writing Book 2nd Edition by Pamela Rice Hahn
Alpha Teach Yourself Grammar and Style in 24 Hours  by Pamela Rice Hahn and Ph.D. Dennis E. Hensley

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