Archive for the 'Chronic Fatigue Syndrome/CFS/CFIDS' Category
Posted on April 23, 2010.
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This page is the index to Chronic Fatigue Syndrome (CFS), Chronic Fatigue Immune Dysfunction Syndrome (CFIDS), and Myalgic Encephalomyelitis (M.E.) awareness t-shirt and gift idea designs in the Chronic-Illness.org T-Shirts and Gift Shop. Some are serious; others are humorous.
For most designs, you can choose from a t-shirt, coffee mug. set of postcards, set of greeting cards or note cards, apron, coaster, framed tile, sweatshirt, and other gift gear.
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Posted on November 8, 2005.
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News from The CFIDS Association of America is that: “On July 14, 2005, the National Institutes of Health issued a Request for Applications (RFA) titled ‘Neuroimmune Mechanisms and Chronic Fatigue Syndrome.’ The announcement states that approximately $4,000,000 has been set aside for successful applications, including an intention to fund 6-10 new studies.”
Additional Studies Details and How to Write to Thank “NIH Director Dr. Elias Zerhouni” Advocacy Information
NIH RFA Info
Posted on November 7, 2005.
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Nevada CFS Research Center
CFIDS.org is reporting that, thanks to the work of advocates Annette and Harvey Whittemore whose daughter Andrea has struggled with CFIDS for more than 17 years, the state of Nevada has approved funding for a state-of-the-art clinic and research center for Chronic Fatigue [and Immune Dysfunction] Syndrome and cancer research. For more information, read Out & About: Something to Celebrate.
Information on Mismanaged CDC Chronic Fatigue Syndrome Research Funds
Questioning the CDC
The Chronic Fatigue Syndrome (CFS, CFIDS) community is already aware of what some consider questionable practices at the Centers for Disease Control and Prevention. Now, writing in The Atlanta Journal-Constitution, in his article reprinted on his Web site former congressman and U.S. attorney Bob Barr says that the CDC needs to refocus its “scattershot” approach and redefine its mission. Barr contends that the CDC, whose annual budget is $7 billion of federal taxpayer money, lacks a clearly defined mission. Barr cites credibility problems such as the CDC 2004 reports that there wouldn’t be enough flu vaccine which they later had to admit was based on faulty estimates; in fact, a huge surplus of vaccine had to be destroyed. Barr also cites the CDC’s flawed 2004 report on obesity-related deaths and what he considers the CDC’s questionable ventures into world mental health issues.
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by Pamela Rice Hahn
When a circumstance, film, or something I’ve read moves me to tears, I often joke that “it’s helping me clear my sinuses.” On some days, tears can occur because of being overwhelmed by what for others would simply be coping with some everyday details. On this day, those tears occurred when I read “I’m sick again” in Anne Urso’s article You’ve never been tired like this in the June 2005 issue of Glamour magazine. Anne’s article chronicles her experiences with Chronic Fatigue Syndrome.
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May 2005
CFIDS Awareness Day button
Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) advocacy work is not just a one-day affair, but one day can make a difference. This year, May 12th was International CFIDS Awareness Day. During the day, 70 CFIDS advocates met with their members of Congress and members of key Senate and House committees, sharing information and personal stories to help make the lawmakers aware of the serious impact CFIDS has on the individual, the family, and the nation.
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