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Getting Congress Involved in CFS Advocacy


CFS/CFIDS/ME Awareness Day ButtonsOn August 8, 2005, 12 members of Congress signed a letter to the National Institutes of Health (NIH) addressing concerns about Chronic Fatigue Syndrome. Among the recommendations is for the establishment of five Centers for Excellence across the United States, each funded at $1.5 million per year for five years for the purpose of the diagnosis, clinical research and management, and treatment of persons with CFS. You can read the letter in PDF format on the CFIDS.org Web site.

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Whether you refer to it as Chronic Fatigue Syndrome (CFS), Chronic Fatigue Immune and Dysfunction Syndrome (CFIDS), or Myalgic Encephalomyelitis (M.E.), the name alone cannot convey the devastation brought about by having to cope with this condition. The “fatigue” in the name refers to much more than just being tired. Those who suffer from this condition experience a fatiguing condition similar to how one feels when you have the flu. Only with the flu, you eventually get better. Imagine dealing with those muscle aches, the weakness, headaches, and other symptoms on a daily basis and you know how someone with CFS feels on a good day.

For more information, see: What is Chronic Fatigue Syndrome?

Related posts:

  1. Chronic Fatigue Syndrome Resources
  2. Redefining Slow: A Chronic Illness Realities Comic Strip
  3. Chiari syndrome and/or cervical spinal stenosis
  4. Sleep Medications for Chronic Fatigue Syndrome and Fibromyalgia
  5. Chronic Fatigue Syndrome Newsletters

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Proceeds from this Web site fund chronic illness and chronic condition awareness and support.

In addition to the chronic illness- and chronic condition-related articles, information, and t-shirt and gift idea designs on this site, Chronic-Illness.org is also the home of the Chronic Illness Realities comic strips.

pammy the pencil a character in the Writing Woes comic strip and the Chronic Illness Realities Comic StripPammy is the main character in two comic strips by Pamela Rice Hahn, the first of which is the Writing Woes comic strip. Pammy is a writer who is also disabled because of chronic illness and chronic conditions, so she also appears in the Chronic Illness Realities comic strip.

 The Everything Low-Salt Cookbook Book: 300 Flavorful Recipes to Help Reduce Your Sodium Intake by Pamela Rice Hahn
 The Everything Diabetes Cookbook: 300 Creative and Healthy Recipes That Put the Fun Back into Cooking by Pamela Rice Hahn
 The Everything One Pot Cookbook: Delicious and simple meals that you can prepare in just one dish; Burst: 300 all-new recipes! 2nd edition by Pamela Rice Hahn
The Everything Improve Your Writing Book 2nd Edition by Pamela Rice Hahn
Alpha Teach Yourself Grammar and Style in 24 Hours  by Pamela Rice Hahn and Ph.D. Dennis E. Hensley

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