How You Can Be a Chronic Fatigue Syndrome Advocate

How You Can Be a CFIDS Advocate

Advocacy efforts to increase CFIDS awareness is not just a one-day event.

The May 12th, 2005 Virtual Lobby Day resulted in 2,516 messages being sent from the The CFIDS Association of America Grassroots Action Center to lawmakers and media professionals. In addition, messages were delivered in person by 58 CFIDS advocates who conducted nearly 80 meetings on Capitol Hill!

Complete T-Shirt and Gift Merchandise Index for “CFIDS/ME/CFS Sucks!” design

Advocacy efforts to increase CFIDS awareness is not just a one-day event, however. In fact, if you haven’t yet taken part, the CFIDS Association of America has updated information on their site to help make it easy for you to participate now.

There are four separate actions targeting Congress, the Secretary of Health, and the media. Letter templates are available to help make your efforts easier; the templates also make it easy for you to add information you wish to share about how CFIDS has affected you.

For directions on how to write to your own members of Congress, click on this link.

Once you’re at the site, you’ll see a prompt to enter your ZIP code. Once you’ve done that, you’re ready to lobby!

This link will direct you to information on how to go about writing to leaders of the health funding committee in Congress, Secretary Leavitt, and your local media.

Also of interest is Lobby Day advocate Janet Helin’s essay on CFIDS advocacy and her CFIDS Lobby Day 2005 experience.

Related posts:

1. What is Chronic Fatigue Syndrome
2. Chronic Fatigue Syndrome/CFS/CFIDS T-Shirts and Gift Ideas
3. Nutritional Ingredients: Preservatives and Their Link to Allergies and Sensitivities
4. Understanding Autoimmune Illness
5. Chronic Illness Serenity Prayer Designs

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