Posted by Pamela Rice Hahn on October 29, 2005.
|
Harriet McBryde Johnson, whose law practice specializes in disability advocacy, is probably best known for the 13 years she protested the Jerry Lewis Telethon. (She resents how Jerry portrays a child’s MD diagnosis as a “death sentence.”)
In her book Too Late to Die Young, Johnson details what life is like for someone who must depend on a personal assistant to help her attend to many of her daily needs and chores. Johnson explains how she faces her challenges from the seat of her motorized wheelchair by tackling none other than the animal rights advocate and euthanasia champion who believes that “children like her” should be killed at birth to allow the parents to have children who will lead a “happier life.”
Read the rest of this entry »
Posted by Pamela Rice Hahn on October 28, 2005.
|
How You Can Be a CFIDS Advocate
Advocacy efforts to increase CFIDS awareness is not just a one-day event.
The May 12th, 2005 Virtual Lobby Day resulted in 2,516 messages being sent from the The CFIDS Association of America Grassroots Action Center to lawmakers and media professionals. In addition, messages were delivered in person by 58 CFIDS advocates who conducted nearly 80 meetings on Capitol Hill!
Complete T-Shirt and Gift Merchandise Index for “CFIDS/ME/CFS Sucks!” design
Read the rest of this entry »
Posted by Pamela Rice Hahn on August 10, 2005.
|
On August 8, 2005, 12 members of Congress signed a letter to the National Institutes of Health (NIH) addressing concerns about Chronic Fatigue Syndrome. Among the recommendations is for the establishment of five Centers for Excellence across the United States, each funded at $1.5 million per year for five years for the purpose of the diagnosis, clinical research and management, and treatment of persons with CFS. You can read the letter in PDF format on the CFIDS.org Web site.
Awareness Day Button
Discounted: 10-Pack | 100-Pack
Read the rest of this entry »
read comments (0)
Pammy is the main character in two comic strips by 
Those observations are often political, so that's when Thera Pist hangs out at 
A professional writer since 1984, Pamela Rice Hahn is the author of more than 20 published books.