How You Can Be a CFIDS Advocate
Advocacy efforts to increase CFIDS awareness is not just a one-day event.
The May 12th, 2005 Virtual Lobby Day resulted in 2,516 messages being sent from the The CFIDS Association of America Grassroots Action Center to lawmakers and media professionals. In addition, messages were delivered in person by 58 CFIDS advocates who conducted nearly 80 meetings on Capitol Hill!
Complete T-Shirt and Gift Merchandise Index for “CFIDS/ME/CFS Sucks!” design
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On August 8, 2005, 12 members of Congress signed a letter to the National Institutes of Health (NIH) addressing concerns about Chronic Fatigue Syndrome. Among the recommendations is for the establishment of five Centers for Excellence across the United States, each funded at $1.5 million per year for five years for the purpose of the diagnosis, clinical research and management, and treatment of persons with CFS. You can read the letter in PDF format on the CFIDS.org Web site.
Awareness Day Button
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May 2005
CFIDS Awareness Day button
Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) advocacy work is not just a one-day affair, but one day can make a difference. This year, May 12th was International CFIDS Awareness Day. During the day, 70 CFIDS advocates met with their members of Congress and members of key Senate and House committees, sharing information and personal stories to help make the lawmakers aware of the serious impact CFIDS has on the individual, the family, and the nation.
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Pammy is the main character in two comic strips by 
A professional writer since 1984, Pamela Rice Hahn is the author of more than 20 published books.