Posted by Pamela Rice Hahn on November 1, 2005.
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“If robbery is the taking without permission, CFS could be the greatest thief of all.” –David S. Bell, MD
When describing how others deal and accept the realities of their illness, those who cope with Chronic Fatigue Syndrome and/or Fibromyalgia often express the sentiment “unless they get it, they just won’t get it.”
CFS Sucks! Tees and Gift Ideas Index
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Posted by Pamela Rice Hahn on October 28, 2005.
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How You Can Be a CFIDS Advocate
Advocacy efforts to increase CFIDS awareness is not just a one-day event.
The May 12th, 2005 Virtual Lobby Day resulted in 2,516 messages being sent from the The CFIDS Association of America Grassroots Action Center to lawmakers and media professionals. In addition, messages were delivered in person by 58 CFIDS advocates who conducted nearly 80 meetings on Capitol Hill!
Complete T-Shirt and Gift Merchandise Index for “CFIDS/ME/CFS Sucks!” design
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Posted by Pamela Rice Hahn on October 19, 2005.
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The e-mail alert service, formerly known as C-ACT, now has a name that better reflects the purpose of this advocacy group: the Grassroots Action Center Listserv (GAC listserv). This CFIDS Association’s new Grassroots Action Center has generated almost 10,000 messages of support for increased Chronic Fatigue Syndrome research and awareness to senators, representatives, other members of the federal government, and members of the media.
(Complete index for the “CFIDS Sucks” T-Shirts and Gift Merchandise Index.)
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Posted by Pamela Rice Hahn on October 15, 2005.
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Complete Index for the T-Shirt, Bumper Sticker, and Other Gift Merchandise that feature the design shown on the left
Definition: Chronic Fatigue Syndrome (CFS), which is also sometimes referred to as Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) or Myalgic Encephalomyelitis (M.E.), is a condition characterized by the primary symptom of a prolonged, persistent debilitating fatigue not relieved by rest and not directly caused by other conditions.
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Posted by Pamela Rice Hahn on October 10, 2005.
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In Dr. Lapp’s words:
This Cochrane review study is a sore subject!
I obtained a copy of the entire review, and it is just horrible. The author examined 9 studies, accepted only 5, and none were from the USA. Here are some of the problems:
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Posted by Pamela Rice Hahn on October 9, 2005.
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Chronic Fatigue Syndrome (CFS), which is sometimes also referred to as Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) or Myalgic Encephalomyelitis (M.E. or ME), is an autoimmune illness characterized by prolonged, devastating fatigue. A new study may provide hope for those who suffer from this disabling condition. According to researcher M. Edmonds with the Cochrane Collaboration research group, patients who participated in a three-month program of exercise therapy that consisted of 30-minute exercise sessions several times a week had improvement in both their energy levels and their quality of life.
Addendum: Many patients with Chronic Fatigue Syndrome suffer from exercise intolerance. Therefore, be sure to see Dr. Lapp’s response to this study.
Posted by Pamela Rice Hahn on October 4, 2005.
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Those who cope with Chronic Fatigue Syndrome (CFS, CFIDS, ME) and Fibromyalgia know firsthand about the frustration of disrupted sleep patterns.
A new study supported by the National Institutes of Health (NIH) suggests that disrupted circadian rhythms (sleep/wake cycles) probably also contributes to a higher risk of heart disease and stroke.
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Posted by Pamela Rice Hahn on October 1, 2005.
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The thought of a drug company proposing “the right dose of the right drug to the right patient at the right time” isn’t what one is used to hearing in this age of blockbuster drugs, but in a speech to shareholders in April that’s what Eli Lilly’s Sidney Taurel proposed as the company’s new “model.” Lilly, which created one of the biggest blockbuster drugs of all time — Prozac, sees research and drug development taking a new direction.
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Posted by Pamela Rice Hahn on August 15, 2005.
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New Study Shows Promise that Skin Tests May Be Able to Provide a Definitive Diagnosis for Chronic Fatigue Syndrome
A new study provides the hope of finding a way to distinguish between what is often the subject of confusion and diagnosis: the devastating “chronic fatigue” that accompanies the baffling and disabling disease called Chronic Fatigue Syndrome (CFS) and the “chronic fatigue” associated with depression.
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Posted by Pamela Rice Hahn on August 10, 2005.
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On August 8, 2005, 12 members of Congress signed a letter to the National Institutes of Health (NIH) addressing concerns about Chronic Fatigue Syndrome. Among the recommendations is for the establishment of five Centers for Excellence across the United States, each funded at $1.5 million per year for five years for the purpose of the diagnosis, clinical research and management, and treatment of persons with CFS. You can read the letter in PDF format on the CFIDS.org Web site.
Awareness Day Button
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Pammy is the main character in two comic strips by 
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A professional writer since 1984, Pamela Rice Hahn is the author of more than 20 published books.