When ‘feeling tired’ signals something more
An excellent
Parade article by Dr. Isadore Rosenfeld that validates
Chronic Fatigue Syndrome (CFS) as a serious medical condition, and discusses
the number of people who suffer with this chronic disease.
Grassroots Action Center Listserv
The e-mail alert service, formerly known as C-ACT, now has a name that
better reflects the purpose of this advocacy group: the Grassroots Action
Center Listserv (GAC listserv) for CFS / CFIDS-related issues.
Center for Disease Control (CDC) Chronic Fatigue Syndrome Information
Chronic Fatigue Syndrome information at the United States government Center
for Disease Control (CDC) Web site.
Chronic Fatigue Syndrome is not all in the mind
A 21 July 2005 New Scientist article regarding differences in gene
expression have been found in the immune cells of people with chronic
fatigue syndrome (cfs), a discovery that could lead to a blood test for the
disorder and perhaps even to drugs for treating it.
Chronic Fatigue vs. Chronic Fatigue Syndrome
A National Institute of Allergy and Infectious Diseases article about the
differences between the extreme and persistent fatigue of Chronic Fatigue
Syndrome versus that of a diagnosis of Chronic Fatigue. The article
discusses research challenges, and why clinical and behavioral research is
important to understanding fatigue.
The CFIDS Association of America Web site
The CFIDS Association of America, the leading CFIDS advocacy group in the
United States, works with the CDC in providing CFIDS education for health
care providers, publishes a magazine, and maintains a grassroots advocacy
listserv. Chronic Fatigue and Immune Dysfunction Syndrome; Chronic Fatigue
Syndrome (CFS); Myalgic Encephalomyelitis (M.E., ME)
The CFIDS Report
Working from the philosophy that the 1994 CDC revised case definition for
CFS is unsound and far too complex because by including too many emerging
fatiguing illnesses under an expansive “fatigue syndrome” label, "it has
been very ineffective in producing consistent research," The CFIDS Report
offers an assortment of links for advocacy issues, CFS articles, and more.
CFIDS, M.E., AND Chronic Fatigue Syndrome Information Site
The CFIDS/M.E. Information Page is maintained by Mary Schweitzer, and
includes links to resources and her personal essays about her experiences
with the disease.
CFS/ME Information from CFS-NEWS
A general Chronic Fatigue Syndrome and Myalgic Encephalomyelitis resource
site maintained by Roger Burns, the publisher of CFS-NEWS.
About CFIDS (Chronic fatigue and immune dysfunction syndrome)
Information on CFIDS (Chronic fatigue and immune dysfunction syndrome , also
known as chronic fatigue syndrome, CFS, myalgic encephalomyelitis, ME and by
many other names) provided by The CFIDS Association of America, Inc.
Chronic Neuroimmune Diseases
Melissa Kaplan maintains this site on Chronic Fatigue Syndrome, Lyme
Disease, chemical sensitivity, pain, and other links and information.
A quote from
Melissa's previous site:
A growing number of researchers now believe that CFIDS is in fact non-paralytic polio. If you grew up during the polio epidemics, or ever received a polio vaccine, then you probably will want to check out the section below on Stealth Virus/Polio...
Due to the dysfunction of the neuroendocrine system, the body reacts to "mere" thinking just as it does to physical exertion
... exercise in a healthy person causes increased blood oxygen levels in the brain and increased metabolism; these increases last for about six hours. When the CFIDS patient does it, however, they are already starting off with a lower-than-normal oxygen level in the brain, and exercise,
instead of increasing it, actually makes it go lower. The body reacts to even mild exercise, like a short walk, as if it has run a marathon on top of working an 80-hour week: extreme pain, fatigue, cognitive dysfunction...and it lasts for 36-48 hours....
Health Matters: Chronic Fatigue Syndrome
National Institute of Allergy and Infectious Diseases (NIAID), National
Institutes of Health (NIH), Department of Health and Human Services general
information site on Chronic Fatigue Syndrome (CFS).
UpToDate Patient Information: Chronic Fatigue Syndrome
Stephen J Gluckman, MD of the University of Pennsylvania School of Medicine
compiled this patient information on Chronic Fatigue Syndrome for
UpToDate.com. UpToDate performs a continuous review of over 330 journals and
other resources, and updates are added as important new information is
published.
Chronic Fatigue Syndrome Hub
A site that provides general information about Chronic Fatigue Syndrome,
including possible causes and treatments.
American Academy of Family Physicians - Chronic Fatigue Syndrome
The American Academy of Family Physicians page on Chronic Fatigue Syndrome
Evaluation and Treatment.
American Journal of Medicine 1998 Supplement on CFS
Information on and links to the full text of the American Journal of
Medicine September 1998 supplement on Chronic Fatigue Syndrome.
The Physical Basis of CFS
An article by Anthony L. Komaroff, MD of Harvard Medical School stating that
although there is no known test or cause for Chronic Fatigue Syndrome (CFS),
it is a mistake a mistake to assume that the illness is not real. The
article cites evidence about the condition.
Dr. Richard Burnet, Royal Adelaide Hospital, Australia CFS Study
A report by Dr. Richard Burnet - senior endocrinologist at Royal Adelaide
Hospital, Australia about increased lactate (lactic acid) production during
exercise in some patients with Chronic Fatigue Syndrome. He also reports on
evidence of a prevalence of reactive hypoglycemia in patients with Chronic
Fatigue Syndrome as well.
Dizziness, Imbalance, and Hearing Disorders
Dizziness and balance problems are often problems experienced by those with
Chronic Fatigue Syndrome and Fibromyalgia. This page maintained by
Northwestern University Medical School Professor and Chicago Dizziness and
Balance's Timothy C. Hain, MD has links to common causes for dizziness and
balance problems, plus information on hearing disorders.
From Skepticism to Science: CFS May Be Getting Some Respect
An article by the author (Dorothy Wall) of the book
Encounters with the Invisible: Unseen Illness, Controversy, and Chronic
Fatigue Syndrome about how, after 20 years, chronic fatigue syndrome
may finally be getting some respect and cutting-edge science.
Chronic Fatigue Syndrome is More Than Just Being Tired
An article detailing what the symptoms and problems with which those who
suffer from Chronic Fatigue Syndrome must cope.
Chronic Fatigue Syndrome
A well-documented article by Dr. Peter Grant, written for Clinical/MedAu.
Chronic Fatigue Syndrome and its Connection to ADD/ADHD
An article written by Michael J. Goldberg, MD, whose wife suffers from
Chronic Fatigue Syndrome.
Have I got Chronic Fatigue Syndrome?
The online version of a patient information leaflet from The Little Surgery,
Stamford, UK.
Peter C. Rowe, MD Revised Guidelines for CFS and POTS
Revised guidelines for CFS and POTS from Peter C. Rowe, MD, Professor of
Pediatrics, Johns Hopkins.
Timothy C. Hain, MD on Orthostatic Intolerance in CFS, POTS
An article by Timothy C. Hain, MD, Northwestern University Medical School,
Chicago in which he states that something as simple as elevating the bed
4-6" can increase a POTS patient's blood volume, and can be helpful after
only a few days. Treatment options, medical tests, and association with
Chronic Fatigue Syndrome (especially in juvenile patients) discussed.
eMedicine Health: Chronic Fatigue Syndrome Overview
eMedicine Consumer Health Web site's overview of Chronic Fatigue Syndrome (CFS).
The Pediatric Network for Chronic Fatigue Syndrome, Fibromyalgia,...
The Pediatric Network for Chronic Fatigue Syndrome, Fibromyalgia, and
Orthostatic Intolerance is a resource for juvenile illness-related
information, such as those needed for school success, eventual independent
living, “youth voices” from those who understand, and more.
Updated Canadian Case Definition for M.E./Chronic Fatigue Syndrome
The Myalgic Encephalomyelitis (M.E.) Society of America's report on the 2003
Canadian update to the case definition for Myalgic Encephalomyelitis (M.E.)
and Chronic Fatigue Syndrome (CFS).
What is the "fatigue" like in "Chronic Fatigue Syndrome"?
An essay by Mary Schweitzer detailing the differing levels of “fatigue” as
she’s experienced them.
What's in a Name? Fibromyalgia versus Chronic Fatigue Syndrome
An Arthritis Foundation article about the overlapping symptoms of
Fibromyalgia and Chronic Fatigue Syndrome.
Youth and Pediatrics/CFS
A general youth and pediatrics Chronic Fatigue Syndrome resource site
maintained by Roger Burns, the publisher of CFS-NEWS.
