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Chronic Fatigue Syndrome Forum

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A Delicate Balance: Living Successfully with Chronic Illness

by Susan Milstrey Wells

Chronic Fatigue Syndrome
Advocacy Milestones


May 2005
Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) advocacy work is not just a one-day affair, but one day can make a difference. This year, May 12th was International CFIDS Awareness Day. During the day, 70 CFIDS advocates met with their members of Congress and members of key Senate and House committees, sharing information and personal stories to help make the lawmakers aware of the serious impact CFIDS has on the individual, the family, and the nation.
   Organized by The CFIDS Association of America, Inc., May 12th was also a Virtual Lobby Day conducted by advocates using the Grassroots Action Center on the Internet.
    President & CEO of the The CFIDS Association of America Kim McCleary reports that the May 12th Virtual Lobby Day resulted in 2,516 messages being sent from the Grassroots Action Center to lawmakers and media professionals. In addition, messages were delivered in person by 58 CFIDS advocates who conducted nearly 80 meetings on Capitol Hill! For more information, see How You Can Be a CFIDS Advocate -- an article about how The CFIDS Association of America makes it easy for anyone to participate in their Grassroots Action Center's ongoing advocacy efforts.

CFIDS Awareness Day Buttons are still available at THIS SITE.

 

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Page updated 26 October 2005