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We Are Not Alone: Learning to Live with Chronic Illness

by Sefra Kobrin Pitzele


A Delicate Balance: Living Successfully with Chronic Illness

by Susan Milstrey Wells


The Art of Getting Well: Maximizing Health and Well-being When You Have a Chronic Illness
(Hardcover)
by Martin L., M.D. Rossman (Foreword), David Spero, Martin L. Rossman

 

 

 


Whether you refer to it as Chronic Fatigue Syndrome (CFS), Chronic Fatigue Immune and Dysfunction Syndrome (CFIDS), or Myalgic Encephalomyelitis (M.E.), the name alone cannot convey the devastation brought about by having to cope with this condition. The "fatigue" in the name refers to much more than just being tired. Those who suffer from this condition experience a fatiguing condition similar to how one feels when you have the flu. Only with the flu, you eventually get better. Imagine dealing with those muscle aches, the weakness, headaches, and other symptoms on a daily basis and you know how someone with CFS feels on a good day.

For more information, see: What is Chronic Fatigue Syndrome?

Fibromyalgia, Chronic Fatigue Syndrome, and Myalgic Encephalomyelitis Support Groups

There are support groups throughout the U.S. and the world who help those who suffer from Chronic Fatigue Syndrome and/or Fibromyalgia learn ways to cope with those devastating conditions. The sites mentioned here provide contact information for those groups.


Chronic Fatigue Support Groups in the United States
This page provides links to Chronic Fatigue Syndrome support groups in the United States.

Google Directory of Chronic Fatigue Support Groups
The Google Directory to Chronic Fatigue Support Groups currently lists more than 500 online and local listings.

Google Directory of Fibromyalgia Support Groups
The Google Directory to Fibromyalgia Support Groups currently lists more than 200 online and local listings.

For Parents of Sick and Worn-Out Children
Web site maintained by Frank Albrecht, Ph.D. on bluecrab.org that offers support and resources for parents whose child or children have Chronic Fatigue Syndrome.

Chronic Fatigue Support Groups Outside the United States
Links to Chronic Fatigue Syndrome international support groups (i.e., support groups outside of the United States).

Fibrohugs
Fibrohugs is an online support group site for those who suffer from Chronic Fatigue Syndrome, Fibromyalgia, and other disabling conditions.

Our FM/CFS World Inc.
A nonprofit organization maintained by sufferers of Fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome. The group's mission is to improve the quality of life for fellow sufferers, while increasing public, governmental and medical awareness of these diseases. Their fundraising efforts are to support research for the cause, treatment, and cure of Fibromyalgia and Chronic Fatigue Syndrome.

Articles & Resources

In This Together: How to Form a Successful Support Group
Jennifer Herman's article offering suggestions about what it takes to have a successful chronic illness support group.

Canadian Support Groups:

(One of the most difficult things to deal with when confronted with a Chronic Fatigue Syndrome, Fibromyalgia, or Myalgic Encephalomyelitis (M.E.) diagnosis is finding the support you need. This is especially difficult because your family and friends may be having difficulty understanding the changes in you -- especially when you don't understand those changes yourself. Those who live in Canada can find help -- or directions on where to find help -- here.)

 

  Chronic Illness Realities Comic Strip

Articles Index

Canadian Support Groups

Canadian Research Groups

Postural Tachycardia Syndrome (POTS)
Information on this disorder, which is caused when a patient has a pulse rate that is too fast when the patient stands. Symptoms include headache, rapid heartbeat, lightheadedness with prolonged standing, chronic fatigue, chest pain, and other nonspecific complaints. Many diagnosed with Chronic Fatigue Syndrome and/or Fibromyalgia also suffer from this disorder.

  Exercise While Sitting Down (with the help of the
Bounce Back Chair)

Because the bounce back exercise chair increases the flow of lymphatic fluids throughout the body by as much as 10 times their normal rate, it helps the body remove toxins, strengthens the immune system, increases muscular strength, and improves blood circulation. Also sometimes referred to as the Bounce Back Fitness Chair, Bounce Back Exercise Chair, and Bounce-Back Chair.

Pictures of the
Bounce Back Exercise Chair

- Fibromyalgia - Enabled Cooking

 

Copyright © 1999-2005 by Pamela Rice Hahn. All Rights Reserved.

 

 

 

 

 

 

 

 

Page updated 08 October 2005