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We Are Not Alone: Learning to Live with Chronic Illness

by Sefra Kobrin Pitzele


A Delicate Balance: Living Successfully with Chronic Illness

by Susan Milstrey Wells


The Art of Getting Well: Maximizing Health and Well-being When You Have a Chronic Illness
(Hardcover)
by Martin L., M.D. Rossman (Foreword), David Spero, Martin L. Rossman

 

Disability Rights Advocacy Issues

Information on groups, individuals, and organizations that advocate for, work to protect, and struggle to advance the legal, human, and service rights of people with disabilities. Conversely, details are provided for advocacy groups that wish to redefine the meaning of "personhood," the "quality of life," and "life choices" or "right-to-die" decisions.
 
How You Can Be a CFIDS Advocate
An article about the success of the May 12, 2005 CFIDS advocacy efforts with information about how The CFIDS Association of America makes it easy for anyone to participate in their Grassroots Action Center's ongoing advocacy efforts.

A Better Way to Ensure that Your Health Care Choices are Honored
By their very nature, no illness or accident is ever convenient. Someone’s medical care should not be based on what is most expedient, practical, or affordable for anyone other than the patient! It's important that your wishes be known if, because of the inconvenience of illness or accident, you are unable to speak for yourself. Some believe that the "Will to Live" in which you appoint a health care proxy or health care agent provides you with more safeguards than does a living will.

Janet Helin's Recounts her "CFIDS Lobby Day 2005" Experience
Janet Helin, who was one of 58 CFIDS advocates who met with legislators in person on CFIDS Lobby Day 2005, recounts her experiences from that day -- and tells why her experience has her feeling optimistic about their efforts.

Be a Better Advocate for the FM Community: Q/A with Karen Lee Richards
Vice-president and co-founder of the National Fibromyalgia Association, and executive director of Fibromyalgia AWARE magazine Karen Lee Richards answers questions about what it takes to be an effective fibromyalgia advocate.

Working with Community Leaders (Fibromyalgia Advocacy Advice)
A fibromyalgia advocacy article by Sharon Waldrop that offers suggestions how anyone can make a difference by working with community leaders to increase fibromyalgia awareness.
 

Increasing Awareness in Michigan - Fibromyalgia Advocacy Success
Sharon Waldrop writes about the success of her fibromyalgia advocacy efforts in Michigan.

Unspeakable Conversations
A February 16, 2003 The New York Times Magazine article by disability rights lawyer Harriet McBryde Johnson. In the article, Johnson discusses her trip to Princeton during which she takes part in a class discussion about disability-based infanticide and the prejudices that propell the assisted suicide movement. Johnson also describes her encounters with infanticide advocate Peter Singer.

Time to take back the ADA - RECLAIMING OUR CIVIL RIGHTS
An article by disability advocate lawyer Harriet McBryde Johnson about the clarifications that need to be made to close the loopholes in the Americans with Disabilities Acts. She argues that the burden of proof should be on the employer to show that an employee cannot perform a task, and that the ADA needs to be broadened so that people don't fall through the cracks of the system.

Too Late to Die Young : Nearly True Tales from a Life
Information on the memoir written by disability advocate lawyer Harriet McBryde Johnson.

 

 

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The purpose of this Web site is to provide a service for the public benefit -- that service being an organized, easy-to-use and -navigate medical reference site. This information is not intended to be an explicit directive of medical or professional health care. Entering this site is acknowledgement that the information contained herein in this service is not legally intended nor implied as a substitute for professional medical advice. Opinions stated on this site are just that: opinions and not advice. One such opinion is that knowledge can be power; it depends on how you use it. Educate yourself and then use such information to help you make better, more informed decisions, as you work with your medical professional in reaching those decisions best for your health. For additional information, see the terms of use.


Page updated 05 October 2005