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We Are Not Alone: Learning to Live with Chronic
Illness
by Sefra Kobrin Pitzele

A Delicate Balance: Living Successfully with
Chronic Illness
by Susan Milstrey Wells

The Art of Getting Well: Maximizing Health and
Well-being When You Have a Chronic Illness
(Hardcover)
by Martin L., M.D. Rossman (Foreword), David Spero, Martin L. Rossman
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| Disability Rights Advocacy Issues |
Information on groups, individuals, and organizations that advocate for,
work to protect, and struggle to advance the legal, human, and service
rights of people with disabilities. Conversely, details are provided for
advocacy groups that wish to redefine the meaning of "personhood," the
"quality of life," and "life choices" or "right-to-die" decisions.
How You Can Be a
CFIDS Advocate
An article about the success of the May 12, 2005 CFIDS advocacy
efforts with information about how The CFIDS Association of America
makes it easy for anyone to participate in their Grassroots Action
Center's ongoing advocacy efforts.
A Better
Way to Ensure that Your Health Care Choices are Honored
By their very nature, no illness or accident is ever convenient.
Someone’s medical care should not be based on what is most
expedient, practical, or affordable for anyone other than the
patient! It's important that your wishes be known if, because of the
inconvenience of illness or accident, you are unable to speak for
yourself. Some believe that the "Will to Live" in which you appoint
a health care proxy or health care agent provides you with more
safeguards than does a living will.
Janet Helin's Recounts her "CFIDS Lobby Day 2005" Experience
Janet Helin, who was one of 58 CFIDS advocates who met with
legislators in person on CFIDS Lobby Day 2005, recounts her
experiences from that day -- and tells why her experience has her
feeling optimistic about their efforts.
Be a Better Advocate for the FM Community: Q/A with Karen Lee
Richards
Vice-president and co-founder of the National Fibromyalgia
Association, and executive director of Fibromyalgia AWARE magazine
Karen Lee Richards answers questions about what it takes to be an
effective fibromyalgia advocate.
Working with Community Leaders (Fibromyalgia Advocacy Advice)
A fibromyalgia advocacy article by Sharon Waldrop that offers
suggestions how anyone can make a difference by working with
community leaders to increase fibromyalgia awareness.
Increasing Awareness in Michigan - Fibromyalgia Advocacy Success
Sharon Waldrop writes about the success of her fibromyalgia advocacy
efforts in Michigan.
Unspeakable Conversations
A February 16, 2003 The New York Times Magazine article by
disability rights lawyer Harriet McBryde Johnson. In the article,
Johnson discusses her trip to Princeton during which she takes part
in a class discussion about disability-based infanticide and the
prejudices that propell the assisted suicide movement. Johnson also
describes her encounters with infanticide advocate Peter Singer.
Time to take back the ADA - RECLAIMING OUR CIVIL RIGHTS
An article by disability advocate lawyer Harriet McBryde Johnson
about the clarifications that need to be made to close the loopholes
in the Americans with Disabilities Acts. She argues that the burden
of proof should be on the employer to show that an employee cannot
perform a task, and that the ADA needs to be broadened so that
people don't fall through the cracks of the system.
Too Late to Die Young : Nearly True Tales from a Life
Information on the memoir written by disability advocate lawyer
Harriet McBryde Johnson.
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| Copyright © 2005 Pamela Rice Hahn
All Rights Reserved |
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