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My Books
We Are Not Alone: Learning to Live with Chronic
Illness
by Sefra Kobrin Pitzele
A Delicate Balance: Living Successfully with
Chronic Illness
by Susan Milstrey Wells
The Art of Getting Well: Maximizing Health and
Well-being When You Have a Chronic Illness
(Hardcover)
by Martin L., M.D. Rossman (Foreword), David Spero, Martin L. Rossman
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Fibromyalgia is a chronic disorder characterized by:
- musculoskeletal pain
- fatigue
- weakness
- tenderness in localized areas of the neck, spine, shoulders, and hips
sometimes referred to as tender points or pressure points
- muscle spasms
- sleep disturbances
- irritable bowel syndrome
- and other body disturbances.
For more information, read: What is Fibromyalgia (FM,
FMS)?
Fibromyalgia Support Groups There are
support groups throughout the U.S. and the world who help those who suffer from
Chronic Fatigue Syndrome and/or Fibromyalgia learn ways to cope with those
devastating conditions. The sites mentioned here provide contact information for
those groups.
Chronic Fatigue Support Groups in the United States
This page provides links to Chronic Fatigue Syndrome support groups in the
United States.
Google Directory of Chronic Fatigue Support Groups
The Google Directory to Chronic Fatigue Support Groups currently lists more
than 500 online and local listings.
Google Directory of Fibromyalgia Support Groups
The Google Directory to Fibromyalgia Support Groups currently lists more
than 200 online and local listings.
For Parents of Sick and Worn-Out Children
Web site maintained by Frank Albrecht, Ph.D. on bluecrab.org that offers
support and resources for parents whose child or children have Chronic
Fatigue Syndrome.
Chronic Fatigue Support Groups Outside the United States
Links to Chronic Fatigue Syndrome international support groups (i.e.,
support groups outside of the United States).
Fibrohugs
Fibrohugs is an online support group site for those who suffer from Chronic
Fatigue Syndrome, Fibromyalgia, and other disabling conditions.
Our FM/CFS World Inc.
A nonprofit organization maintained by sufferers of Fibromyalgia and Chronic
Fatigue Immune Deficiency Syndrome. The group's mission is to improve the
quality of life for fellow sufferers, while increasing public, governmental
and medical awareness of these diseases. Their fundraising efforts are to
support research for the cause, treatment, and cure of Fibromyalgia and
Chronic Fatigue Syndrome.
Articles & Resources
In This Together: How to Form a Successful Support Group
Jennifer Herman's article offering suggestions about what it takes to have a
successful chronic illness support group. Canadian Support Groups:
One of the most difficult things to deal with when confronted with a Chronic
Fatigue Syndrome, Fibromyalgia, or Myalgic Encephalomyelitis (M.E.)
diagnosis is finding the support you need. This is especially difficult
because your family and friends may be having difficulty understanding the
changes in you -- especially when you don't understand those changes
yourself. Those who live in Canada can find help -- or directions on where
to find help -- here.
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Chronic Illness Realities Comic Strip
Articles Index
Canadian Support Groups
Canadian Research Groups
Postural Tachycardia Syndrome (POTS)
Information on this disorder, which is caused when a patient has a pulse rate
that is too fast when the patient stands. Symptoms include headache, rapid
heartbeat, lightheadedness with prolonged standing, chronic fatigue, chest pain,
and other nonspecific complaints. Many diagnosed with Chronic Fatigue Syndrome
and/or Fibromyalgia also suffer from this disorder. |
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Exercise While Sitting Down (with the help of the
Bounce Back Chair)Because the
bounce back exercise chair increases the flow of lymphatic fluids throughout
the body by as much as 10 times their normal rate, it helps the body remove
toxins, strengthens the immune system, increases muscular strength, and improves
blood circulation. Also sometimes referred to as the Bounce Back Fitness Chair,
Bounce Back Exercise Chair, and Bounce-Back Chair.
Pictures
of the
Bounce Back Exercise Chair |
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Fibromyalgia |
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