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Personal Stories & Reports
DO AN INTRO.
Articles & Resources
Author of 'Seabiscuit' endures rough ride
An article about Laura Hillenbrand, the author of "Seabiscuit" who has CFS. The
article was written after the publication of her book and shortly before the
release of the film based on the book.
Betting on Seabiscuit
An article that originally appeared in the December 2002 issue of Smithonsonian
Magazine about how, despite her chronic fatigue syndrome, Laura Hillenbrand beat
the odds and wrote a bestseller.
Spotlight on PWC Mark Kahle
Mark lives in Costa Rica with his new wife and adopted daughter. His CFIDS has
greatly improved since his move to that country and he attributes his better
health to the lack of chemical interference in the air, the clean water, and the
native fruits and vegetables. Mark also describes his work on a raffle to
benefit CFIDS research.
CFIDS Advocate Tom Sheridan
Tom Sheridan of The Sheridan Group is a Capitol Hill lobbysit and advocate for
CFIDS causes.
Spotlight on Dr. Lucinda “Cindy” Bateman
An article about Dr. Lucinda “Cindy” Bateman, a doctor who has spent more than
15 years working with patients who have CFIDS and Fibromyalgia. Dr. Bateman is
the co-founder and executive director of OFFER, the Organization for Fatigue and
Fibromyalgia Education and Research.
Dr.
Cheney Tribute
A patient's tribute page to her physician, Chronic Fatigue Syndrome expert Paul
Cheney, MD, PhD, who underwent heart transplant surgery in October 2003. (Site
update says that he's resumed patient care.)
SupportME.co.UK
Established by Jonathan Maddicott, who describes himself as a “recovering M.E./CFS
sufferer”, this site is an online for Myalgic Encephalomyelitis, Chronic Fatigue
Syndrome, Post Viral Fatigue Syndrome, and Fibromyalgia resource.
Chronic Fatigue
Syndrome? or Chronic Mercury Poisoning?
Jeff Clark’s personal site that includes articles about his claims he was cured
of Chronic Fatigue.
Personal Stories
Chronic Fatigue Syndrome robs its victims of their chances to lead normal
lives. These are first-person PWC accounts of how devastating the illness has
been to the patient, written on a very personal level, often with details about
how CFS / CFIDS / ME has affected family life and relationships, friendships,
ability to work, social life, and other things that most people take for
granted. Quotes on "How Did Your
Chronic Fatigue Syndrome Start?"
CFS Victims Relate Their Personal Experiences
Compiled and edited by Pamela Rice Hahn
My Before and After Story by Becca Brasfield, PWC
Becca's CFIDS diagnosis came after she received radioactive iodine treatment
for a growth on her thyroid. Now unable to work, Becca also relates how she
must and does cope with short-term memory problems and other changes and
problems in her life because of CFS.
The All-consuming Monster by Teri Van Horn, PWC
For Teri, CFIDS began to impact her life after she was recovering from a
staph infection. Frank in her discussions about the lack of support from
family members who call her lazy (“No one is that tired all the time.”), her
Vistide treatments, career changes and choices, and having to discontinue
caring for the horses she loves, Teri relates how being a PWC has changed
her life.
What is the "fatigue" like in "Chronic Fatigue Syndrome"?
An essay by Mary Schweitzer detailing the differing levels of “fatigue” as
she’s experienced them.
A Personal (CFIDS) Story by Taffy Todd, PWC
Taffy relates how she's able to work a flex-time job created for her by a
local vocational rehabilitation program.
Chronic
Fatigue Syndrome - One Man’s Recovery
Frank Jenner’s site documenting how he treated and improved his Chronic
Fatigue Syndrome, Fibromyalgia, sleep apnea, and irritable bowel syndrome.
Relationship Stories:
Loving and/or Living with Someone with CFS/FMS/MCS
These Chronic Fatigue Syndrome, Fibromyalgia, and/or MCS stories are
first-person accounts of what it's like to love or care for someone with CFS or
FMS. These storeis are written on a very personal level, often with details
about the everyday realities of how CFS / CFIDS / ME / FMS / MCS affects family
life and relationships, friendships, social life, and other things that most
people take for granted.
CFIDS from a Husband’s Point of View by Robert Joe Stout
A husband's compassionate account of how CFIDS has changed his wife's life, and
by association, changed his as well. He discusses treatments she's tried
(chiropractors, water aerobics, gamma globulin, antidepressants, muscle relaxers,
Hitachi mushroom pills, herbs to control her adrenalin flow) and ignorant
comments from others that she's endured.
Falling for a Person with CFIDS by Sam Oldham
Sam Oldham relates his story of his relationship with Victoria, a highly
functioning PWC who is about to complete college and begin work on her master's,
and works full time at a medical malpractice company and as a staff writer for a
local magazine
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